RESOURCES

Disability and Chronic Fatigue Syndrome(ME/CFS) IV: Resources by Cort Johnson

Books and Articles

How to Apply for Social Security Disability Benefits If You Have Chronic Fatigue Syndrome (CFS/CFIDS)" - compiled by Kenneth S. Casanova - is available free from the Massachusetts CFIDS Association website. Easily the best single disability resource on ME/CFS.

Scott Davis’s Papers on Chronic Fatigue Syndrome Disability – Scott Davis is an attorney experienced in chronic fatigue syndrome disability. His articles provide valuable tips on how to prepare your case.

• Five Crucial Steps to Winning your Chronic Fatigue Syndrome (CFS) Disability Case (1999)
• 15 Mistakes You Can Not Afford to Make! (2000)
• Winning Your Disability Case with the Help of Co-Workers, Family Members and Friends [Affadavits are Important] (2001)
• Completing Disability Forms: Five Critical Tips to Keep in Mind for Chronic Fatigue Syndrome and Fibromyalgia Patients (2002)
• Your Social Security Case Do You Need an Attorney to Win? (2002)

Tips for Winning a Fibromyalgia or Chronic Fatigue Syndrome Disability Case...and...What Actually Happens at a Social Security Disability Hearing? - an article by Jonathan Ginsberg, attorney

Dr. Podell's Tips on Wining Your ME/CFS Disability Case  - Dr. Podell in a New Jersey physician specializing in ME/CFS.

Disability and Chronic Fatigue Syndrome - A good rather technical two- part article on achieving disability in chronic fatigue syndrome from the Disability Doc website.

Disability Services Guide - 61 Questions About Social Security Disability Servicesu> Disability services can help applicants navigate the disability process. This disability services FAQ answers many of your questions. (About Arthritis)

Disability Issues for Those With Headaches and Migraine Disease
One of the problems people with headache disorders and Migraine disease have when it comes to disability issues is that ours are invisible diseases. Still, we have rights under the Americans With Disabilities Act, the Family and Medical Leave Act (About Headaches & Migraines)

Websites

DisabilityInfo.gov - Provides information on the federal government and disability. Newsletter subscription available

Disinissues – (DIS-ability IN-surance ISSUES at )– a Yahoo discussion group (not a support group) site where patients with "invisible disabilities" such as CFS and FM can "share information and advice about the processes of applying for, appealing, and renewing Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), and private long-term disability insurance."

The purpose of Disinissues is to share information and advice about the processes of applying for, appealing, and renewing Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), and private long-term disability insurance

• Disinissues Chat Group on YahooGroups.com

Phoenix Rising - a four-part overview of achieving disability in chronic fatigue syndrome; Helpful Hints, Getting the Diagnosis, Documenting Your Limitations, Resources.

Disability Forum - a forum on Phoenix Rising devoted to discussing disability topics

Untangling the Web – an exhaustive, award-winning linked listing of disability information on the Web, sponsored by the International Center for Disability Information at West Virginia University. This international resource covers topics ranging from computer technology to employment and career resources.

The Disability Forums - a forum for private insurance disability issues.