RESOURCES

Online ME/CFS (Chronic Fatigue Syndrome) Conference Video's and Podcasts

Thanks to Tate Mitchell for providing this list of conference video's

Calgary Conference - Nov, 2008

 PART 1: Diagnosis and Assessment of Patients With CFS/ME Oct. 24, 2008
 PART 2: Clinical Management of CFS/ME Nov. 7, 2008

• What is ME/CFS - Dr. E. Stein,  Oct. 24,2008
• History, Physical and Laboratory Investigations - Dr. P. Flor-Henry, Oct. 24,2008
• Assessing Occupational Disability -  Dr. I. Esche, Oct. 24,2008
• Differentiating CFS and ME from Common Psychiatric Conditions - Dr. E. Stein,  Oct. 24,2008
• Managing Pain, Diet, and Taking an Environmental History - Dr. Alison Bested, Nov 7, 2008
• Meditation and Other Self Management Approaches to Chronic Illness  - Dr. E. McCrank,  Nov. 7,2008
• Grief and Loss - Dr. E. Stein, Nov. 7, 2008
• Research Update and Clinical Tips from the Experts - Nancy Klimas Lecture - Nancy Klimas, MD Nov. 9th, 2008. The total podcast is approximately 1 hour and 24 minutes. The first 15 minutes has singer, songwriter Anthony Burbidge engaging the audience in the singing of his inspirational "You are welcome here" and "I am not alone. He is followed by Craig Burrows, the President of the ME-FM Society of Alberta, introducting members of the ME-FM Society executive and then keynote speaker, Nancy Klimas, M.D.
• Theraputic Exercise and Activity in CFS/ME  Pacific Fatigue Laboratory Nov. 9th, 2008
• Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia  - Dr. Alison C. Bested Nov. 9th, 2008

 International Symposium on Viruses in CFS & Post-viral Fatigue - June 2008

A satellite meeting of the 6th International Conference on HHV-6 & 7 in Baltimore, Maryland,  USA Day 4 - June 23, 2008

• Nora Chapman (Enterovirus Session) - How does a lytic enterovirus persist and cause chronic disease?
• John Chia (Enterovirus Session ) - The role of Enteroviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome -
• Kenny De Meirleir (Clinician Forum Session) - Antiviral treatment strategies in Chronic Fatigue Syndrome - http://www.scivee.tv/node/702
• Brigitte Huber (EBV & Other Viruses Session) - EBV and IFN-a activation of the human endogenous retrovirus HERV-K18 and CFS-
• Jonathan Kerr (Microarray Studies Session - Gene expression subtypes of Chronic Fatigue Syndrome (CFS)
• Jonathan Kerr (Parvovirus B-19 Session) - Stress and parvovirus B-19 associated arthritis and chronic fatigue
• Nancy Klimas (Immune Markers & Viruses Session - Immune markers in viral reactivation
• Anthony Komaroff (HHV-6 & 7 in CNS Dysfunction Session) - Overview on HHV-6 and Chronic Fatigue Syndrome
• Kazuhiro Kondo (HHV-6 & 7 in CNS Dysfunction Session) - Identification of novel HHV-6 latent protein associated with mood disorders in CFS, depressive disorder, bipolar disorder and HHV-6 encephalopathy
• Dirk Lassner (Parvovirus B-19 Session) - Erythroviral myocarditis and fatigue like symptoms
• Jose Montoya (Clinician Forum Session) - Role of elevated antibody titers against human herpesvirus-6 and Epstein-Barr virus in predicting response to Valganciclovir in patients with Chronic Fatigue Syndrome
• Peterson (Clinician Forum Session) - Antiviral treatment of patients with HHV-6, EBV & Enterovirus: caser reports
• Barbara Savoldo (EBV & Other Viruses Session)   - Chronic EBV: Comparison to CFS and the use of autologous EBV-specific cytotoxic T- cells for treatment of persistent EBV infection
• Mariko Seishima (Parvovirus B-19 Session)  - Chronic Fatigue Syndrome following human parvovirus B-19 infection
• Keizo Tomonaga (Bornavirus Session) - Bornavirus infection: mechanisms of virus-induced neurological disorders and possible link to Chronic Fatigue Syndrome"
• Marshall Williams (EBV & Other Viruses Session) - EBV-encoded dUTPase and immune modulation; implications for Chronic Fatigue Syndrome

Dr. Lerner

• Grand Rounds Presentation by Dr. Lerner - A a condensed version  presented by  Dr. A. Martin Lerner to a group of physicians and medical professionals on the topic  of Chronic Fatigue Syndrome on August 22, 2007 at William Beaumont Hospital, Royal Oak, Michigan - 2007 Michigan
• Dr. Martin Lerner - London, 2008: A condensed version of Dr. A. Martin Lerner's presentation at the 3rd Invest in ME International ME/CFS Conference held in London, England on May 23, 2008 on the sub-grouping and treatment for ME/CFS- London, 2008

ME/CFS Conferences in Sweden - 2007/2008

• Malcolm Hooper - Emeritus Professor of Medicinal Chemistry at the University of Sunderland - A Lecture on ME (chronic fatigue syndrome) Oct. 4, 2007 - Malcom Hooper (audio)
• Dr. Daniel Peterson, Whittemore Peterson Institute- Oct. 17, 2007 - Dr. Daniel Petersen (audio)
• Dr. Daniel Peterson  Care For Patients with ME/CFS- May 28, 2008 - Dr. Daniel Peterson, International ME Expert and Medical Director for
•  The Whittemore Peterson Institute for Neuro-immune Disease, University of Nevada Medical School, USA- Speaking May 28, 2008 in Malmo,
Sweden - Dr. Daniel Peterson
• Dr. Peterson (slides)

OFFER CONFERENCE VIDEO's (2004-2008)

Over the past several years, OFFER has conducted conferences to educate both Medical Providers, Patients, caregivers and others interested in these illnesses.

2004 Patient Conference

• A New Approach for Successful Disability Claims - Mary Covington
• Understanding Jaw Disorders & Associated Pain - James Guinn, DMD, PC
• Diagnosis & Epidemiology of Chronic Fatigue Syndrome - Leonard Jason, PhD

Provider's Conference

• Evidence of Fibromyalgia as a Sleep Disorder - Martin Scharff, PhD
• Stress, Sex Hormones, and Fibromyalgia - Akiko Okifuji, PhD
• Central Autonomic Central Nervous System Regulation - Andrew Holman, M.D.
• Disregulation of the Antivral Pathway & Viral Reactivation in Chronic Fatigue Syndrome Dan Peterson, MD -

2005 OFFER Conference

• Panel for Newly Diagnosed - Carol Arnzen, Peggy Allen, Joyce Day, Lloyd Gold
• Managing Fatigue: Patient Perspective -  Lucinda Bateman, MD
  -
• Qigong: Activating the Healer Within - Don W. Glover, MSW, PhD
Sex, Relationships, & CFS/FMS Patricia A. Fennell, MSW, LCSW-R -
• Research Advances in Chronic Fatigue Syndrome - Nancy Klimas, MD
•   Panel for Support People - Suzanne Pratt, LCSW & Catherine Benton, LCSW
• Managing Pain - Olivia Walton, PA-C

OFFER 2007 Conference

  Provider's Conference

• Introduction of the Chronic Fatigue Syndrome/ME/Fibromyalgia Model - Dr. Lucinda Bateman
• FMS/CFS and Genetic Factors - Lisa Cannon-Albright, PhD
• Stress Physiology: The HPA Axis and the Autonomic Nervous System - Kathy Light, PhD
• The Physiology of Chronic Pain and Fatigue - Alan R. Light, PhD
• Infectious and Immune Factors - Nancy G. Klimas, MD -
• Health Impact of Chronic Sleep Disturbances - Robert Farney, MD
• Pediatrics/Adolescents (Pediatric Case Definition) - David Bell, MD
• Chronic Fatigue Syndrome: A Unifying Theory - Charles Lapp, MD
• Fibromyalgia: A Unifying Theory - Andrew J. Holman, MD

Treatment Pearls

• Fibromyalgia - Dr. Andrew Holman
• ME/CFS - Dr. Lucinda Bateman
• Coping Through the Stages of Illness - Dr. Stuart Drescher

Patient's Conference

• Lynne Matallana - President of the National Fibromyalgia Association; Fibromyalgia Aware, Magazine Editor-  Lynne Mattallana
• Suzanne D. Vernon, PhD - Centers for Disease Control & Prevention Molecular Epidemiology Team Leader  - The Role of Genetics in CFS
• Gudrun Lange, PhD - Professor and Clinical Neurologist at the New Jersey Medical School; Director, War Related Illness and Injury Study Center (WRIISC) DVA NJ, Health Care  System (video missing- no active link)
• Thomas Harrison, LCSW - Treats Men, Women and children who suffer from chronic illnesses, and their families. -  Coping with CFS/ME

OFFER 2008 Conference -

• Living with Fibromyalgia - Daneen Akers and Stephen Eyre, makers of the film "Living with Fibromyalgia
• New Research and Biomarkers for FMS/CFS - Kathleen Light, PhD, University of Utah Pain Research Center
•  Updates in Diagnosis and Treatment of FM - N. Lee Smith, M.D.
• Updates in Diagnosis and Treatment of CFS - Lucinda Bateman, M.D.
 
• OFFER-PATIENT CONFERENCE SUMMARY - by Linda Milne (text)

2009 IACFS/ME Conference  in Reno

•  Overview by Anthony Komaroff, M.D.