XMRV Information Center
"It's a Brave New World for Chronic Fatigue Syndrome" Paul Cheney, MD
THE XMRV INFO CENTER
Info
Testing, Treatment and Transmission
Blogs and Articles
The Science
ME/CFS Professionals Talk on XMRV
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The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS)
patients could be
a demarcating point in the history of this illness. The publication of the study in
Science, the
most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute,
the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories
across the major media outlets and scientific publications including Nature, Scientific American, the New York Times,
(two articles), NPR, Fox News, LA Times, etc.
Amid concerns that the blood supply
was contaminated the NIH officials announced they'd already held a conference on the issue.
The Whittemore Peterson Institute rapidly conferred a new name for what it
believes are a cadre of XMRV diseases they're choosing to call XAND (X Associated Neuroimmune Diseases).
Questions were quickly raised concerning prevalence, transmission, testing,
treatment, etc. Much is still unknown about this new finding with news coming in almost daily.
The Latest
Phoenix Rising has many
resources on XMRV.
Check out the Phoenix Rising XMRV Buzz page for
up-to-date information on the latest news and events.
Check out Treatment and
Testing sections, transcriptions of talks,
the Resources section, an
XMRV Studies page and much more are available.
The 'Bringing the Heat' Blog and the
Front Page section of the Phoenix Rising
Forums frequently feature articles on XMRV. Of course the
Phoenix Rising Forums
are the place to go to
discuss XMRV.
Please post comments/suggestions to me using the contact box on the above left
top of the page or at phoenixcfs@gmail.com.
The Phoenix Rising website is compiled by a layman. It is not a substitute for a
physician and is for informational uses only. It does not present complete
information on this drug. Please discuss any treatments in these pages with your
physician.