Making A Difference in ME/CFS
(Chronic Fatigue Syndrome) and Fibromyalgia

ME/CFS

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FM

What is FM?

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Advocacy Issues

• Making A Difference on the State Level: the NJCFSA
• CDC Quickly Breaks First Promise!
• The Wave Begins? Swine Flu, ME/CFS and the CDC
• CFIDS Association and Patients Blast the CDC
• Petition against the Empirical definition

ME/CFS Advocacy

Chronic Fatigue Syndrome (ME/CFS) Advocacy

The Friedman Papers

• Introduction
• Speak Out! The Life You Save May Be Your Own!
• Fish or War? Background Information for the CFSAC Recommendations
• An Three Part Interview with Dr.  Ken Friedman (2008)

Part I: The Federal Response to Chronic Fatigue Syndrome (ME/CFS) and the CFSAC

Part II: Chronic Fatigue Syndrome  (ME/CFS) Research: Roadblocks and Opportunities.

Part III: Advocacy: A Remarkable Success, The Name Change and Hope For the Future

The National Institutes of Health

• CFSAC Meeting May, 2007: Part I
• CFSAC Meeting May, 2007: Part II
• The NIH at Work: The Neuroimmune Grant Package for ME/CFS
• ME/ CFS Funding at the NIH
• FOIA Reveals Breakdown at the CFS Research Program in the NIH (3/08)
• CFSAC Meeting Nov, 2007 - Overview
• CFSAC Meeting May, 2008 - Overview

ME/CFS Advocacy: Blogs From the Webmaster

• The NIH: On the Clock - Parts I, II and III (Feb-March 2009)
• Taking Stock: ME/CFS Advocacy (2007)
• A Call For Fairness in Advocacy (June 2007)
• Trends in ME/CFS Research (2005)

Testimony Before the Chronic Fatigue Syndrome Advisory Committee

• Disconnect at the NIH:  (May 2007)
• A Failed Program: Getting the Answers (Nov 2007)
• The Real Culprits (May 2009)

Five Year CDC Research Plan Resource Page (2009)

• Patient Comments, Blog's, Paper's, etc.